WOW! 2 WEEKS SINCE "SI"S LIFE ALTERING CALL"

 SiLas Be Team Update<<>> room 22

MENU>SiLas has been eating homemade omega-3 egg salad sandwiches and blanched carrots > recipe: mix together veganaise, small amount of olive oil , turmeric, 1/2 clove crushed garlic, dash of tamarii and cider vinegar ADD mashed eggs.....serve open faced  on GF brown rice bread.....HE LOVES IT....he needs good quality protein to heal!

Last night Dan and I brought  Si a 16 inch cheese pizza from Greenbush : pesto instead of tomato sauce w/ fresh  basil to CELEBRATE his first walk outside! mmmmmmm good, as usual.

Tonight his Dad brought him dinner from Himal Chule,  a healing soup of steamed ground bison 

w/ Roti.. Jamuna made it for him and added a big dose of love . Thanks Jamuna!  She is traveling to Nepal to visit with her family for a  month and we will miss her.

 SiLas 's sugar levels are starting to stabilize with a combo of taking insulin and eating at regular intervals.   He will continue to monitor his sugar levels on discharge. Si will also need to go for a  blood draw once a week and physical rehab 2x weekly. It is going to take at least 2 more months for him to heal up from the surgery and he won't be driving for awhile.

We have had lots of "education training " about what signs of rejection or illness to watch for and when to call our TX coordinator Kelly.  He will be on 3 anti-rejection drugs for the rest of his life.

It is so wonderful that summer is in full bloom for SiLas to enjoy as he takes himself and his new lungs out into Nature's glory for healing sessions with the elements. Note to self: Get a comfortable lawn chair for Si so  he can recline and put his feet up.

Dan and I went to Deer Park tonight for a Medicine Buddha Puja . It was great to be in the Temple, listening to prayers  in Tibetan. The powerful sounds of the conch, cymbal, drum, and bells were so soothing and comforting. I felt deep gratitude that SiLas Be has got his miracle and that his Journey will be continued. Om Mani Padme Hum ~~~~~May all Sentient Beings Be Free From Suffering~~~~~

 

I Love to Breathe cause I Love Trees SiLas Be "Of The Forest "

SiLas 2.0

July 1 >> SiLas Be Team update>>>

Room 22

Si has been eating goat yogurt w/goat kefir, organic bananas, and homemade chicken shitake mushroom soup with jasmine rice for the past couple of days. We just found out that the prednisone is causing him to retain sodium ( thus the puffy feet) so after all these years of extra salt and tamari he is on a low salt diet. He was on 20 mg of prednisone 2x daily and now he is on 15 2x daily.The goal is to wean him down to 5 mg a day.
SiLas is also on a low sugar, low fiber, low fat diet. So he will be making some major lifestyle changes so he is not at risk for high blood pressure/heart disease. Also one of the anti-rejection drugs puts him at risk for skin cancer so he will have to be careful in the sun 10-3. I am taking all this in and trying not to get overwhelmed since none of us have had much sleep for 2 weeks.
He had a bronchoscopy today ( which is routine w/ TX to make sure there is no sign of organ rejection.They go down his throat to take a small sample of tissue from inside his lung and examine it ) When we brought the soup in today SiLas had just walked up some stairs for the first time and was sitting in his recliner with his canula off ( he has slept the past couple of nights without it too> THIS IS GREAT NEWS! weaning more and more off of the 02)
He got really sleepy after eating because he had been sedated for the test so we left so he could rest. Rest is Best.

Flowers brought in by Caitlin from the farmers market

The Flowers were brought in by Caitlin from the farmers market.
He can't have flowers in the room but he can see them from his chair thru the window.

65 Roses

When SiLas was a child the C.F. clinic would call cystic fibrosis 65 roses so he could learn how to pronounce it. 28 years later  SiLas is well on his way to recovery from major surgery. In his words "making  his way up  transplant  mountain."