SUPER MOON >SUPER DAY> SUPER SI

  When SiLas was born  he had to have an intestinal blockage removed 6 hours
later ( major surgery to his abdomen)   I  remember that when I went to visit him for the first time in the intensive care unit of Children's Hospital , they had given him a
superman pin, with the "S" logo that superman wears on his chest,  attached to balloons near his bed.
This may sound strange but it wasn't until I watched the movie " Ironman " about a year ago that I stopped being afraid for SiLas to have the transplant. I guess you have to be a kind of superhero to
live your entire life battling Cystic Fibrosis.
This Journey to TX has taken its toll on all of us who Love SiLas Be. we have all been thru numerous changes, highs and lows every step of the way.
 We are almost 96 hours into > Post Transplantation Recovery Period <
and I am happy to announce that at this moment they are removing the first tube ( of 4) and they will remove 1 tube a day from his new lungs if all goes well.
( the tubes really cause him pain and discomfort)
  AND  they will begin him on a clear liquid diet today. I am going to bring him healthy nutritional alternatives to what they would be serving him there.
Oh, Si just called and the first tube was removed successfully (yeah!) and it wasn't as painful as he thought it would be ( phew, that is a relief!)
SO.................................... REJOICE.........Om Mani Padme Hum......................................