Room 22
Si has been eating goat yogurt w/goat kefir, organic bananas, and homemade chicken shitake mushroom soup with jasmine rice for the past couple of days. We just found out that the prednisone is causing him to retain sodium ( thus the puffy feet) so after all these years of extra salt and tamari he is on a low salt diet. He was on 20 mg of prednisone 2x daily and now he is on 15 2x daily.The goal is to wean him down to 5 mg a day.
SiLas is also on a low sugar, low fiber, low fat diet. So he will be making some major lifestyle changes so he is not at risk for high blood pressure/heart disease. Also one of the anti-rejection drugs puts him at risk for skin cancer so he will have to be careful in the sun 10-3. I am taking all this in and trying not to get overwhelmed since none of us have had much sleep for 2 weeks.
He had a bronchoscopy today ( which is routine w/ TX to make sure there is no sign of organ rejection.They go down his throat to take a small sample of tissue from inside his lung and examine it ) When we brought the soup in today SiLas had just walked up some stairs for the first time and was sitting in his recliner with his canula off ( he has slept the past couple of nights without it too> THIS IS GREAT NEWS! weaning more and more off of the 02)
He got really sleepy after eating because he had been sedated for the test so we left so he could rest. Rest is Best.
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